Il Divo’s Sébastien Izambard has become an Ambassador for the Australian charity, Sanfilippo Children’s Foundation in a bid to help raise awareness of the fatal Sanfilippo Syndrome disease.
Sanfilippo Syndrome (also known as MPSIII) is a genetic condition that affects the metabolism and results in severe damage to the central nervous system.
Founded by Megan and Al Donnell, whose children Isla, 6 and Jude, 3, have been diagnosed with the rare disease, the Sanfilippo Foundation is a not-for-profit charity that dedicates their resources to progressing clinical research.
Seb spoke about the importance of bringing people’s attention to this foundation:
“My family and I had the pleasure to spend time with the Donnell family recently. They are fighting for a cure, and it is close. I love Isla and Jude and want to see them grow up. As a father of three young children myself, l can not watch helplessly. If I were in their position I would be fighting as hard as they are. Now I stand with them and will do everything I can, to help them raise awareness and funds for the proposed clinical trial, which could in fact save Isla and Jude’s life, and many other children that are living with this debilitating and rare disease”.
To read more about Seb’s involvement as an Ambassador, read this article: http://www.dailytelegraph.com.au/entertainment/sydney-confidential/il-di...
To support Seb, visit http://www.sanfilippo.org.auBack to news index